Finally Monday morning was here! Got the call at 8:00am that the MRI was at noon. When we got there they told us that they may have to sedate her if she doesn't stay still in the MRI by swaddling and some sweeties (hospital grade sugar water) on her Binky. If they ended up having to sedate her we would have to stay the night in the hospital for observation because she is so little. Thankfully she did great and they didn't have to sedate her as she slept through the whole thing so we got to go home.
We were hoping to get the results back that day so we quickly ran to get something to eat and to the grocery store so we could be at home when they called. It was now approaching 5:00pm so I was beginning to think that we were not going to get results today. It was just then my phone rang....it was the doctors office. She explained to me that they found massive fluid on the brain and a bleed. She has contacted the Neurosurgeons and they are expecting us. We needed to leave for Iowa City (2 hours away) with in the next 30 minutes. My heart sank and I was sick to my stomach.
At that point we quickly grab some clothes and started driving. Everything was kind of a blur. I am not sure what we grabbed to bring with us and what was going on. OMG can this really be happening??? That 2 hour car ride seemed like took FOREVER! We finally arrived in the ER and they quickly got us back to get everything started. The Neurosurgeons came to meet with us and explained that they would take a look at her MRI and get a plan together in the morning as to what they wanted to do. They called the neonatal lifeflight team down to start her IV. Once they got her IV started they took up to our room.
This is when our lives were turned upside down...
Wednesday, November 16, 2011
Halloween Weekend
One Month Check Up
On October 28th we headed to the doctors office for Nora's 1 month checkup. We were hoping to find out that her heart murmur was gone and we had nothing to worry about. As any new mom would do I asked our pediatrician a million questions. My biggest concern was with Nora's eyes as they would do this funky thing where she would look down so you could only see half of her eye and then they would "bounce". My first thought was she was having a seizure but she never was unresponsive or got stiff so that didn't make sure sense. Since I didn't know what was going on and it only happened randomly I thought I would ask the doctor about it and now I am glad I did.
The doctor listed to see if she could still hear the heart murmur which thankfully she said it was gone! We then started talking about Nora's eyes, her head circumference and that her sutures lines we so spread apart. Since all of that was going on her Doctor wanted to get a ultrasound right away to see what was going on. They got us in that day to have it done. The results were that they saw some fluid on her brain and then wanted to have a MRI done on Monday.
Monday, really you tell me they see fluid on her brain and you want me to wait all weekend to get more answers. How was I suppose to relax and enjoy the weekend knowing this was happening to my baby girl and not really knowing what it all meant. Looking back I am glad that I didn't know what it meant because it was Halloween weekend so at least we had a little fun.
Our Little Ladybug's First Halloween
We enjoyed the afternoon with my family at the Dowling Pancake Breakfast followed by Living History Farms. After that we went over to the Kinney's for trick or treating.
On October 28th we headed to the doctors office for Nora's 1 month checkup. We were hoping to find out that her heart murmur was gone and we had nothing to worry about. As any new mom would do I asked our pediatrician a million questions. My biggest concern was with Nora's eyes as they would do this funky thing where she would look down so you could only see half of her eye and then they would "bounce". My first thought was she was having a seizure but she never was unresponsive or got stiff so that didn't make sure sense. Since I didn't know what was going on and it only happened randomly I thought I would ask the doctor about it and now I am glad I did.
The doctor listed to see if she could still hear the heart murmur which thankfully she said it was gone! We then started talking about Nora's eyes, her head circumference and that her sutures lines we so spread apart. Since all of that was going on her Doctor wanted to get a ultrasound right away to see what was going on. They got us in that day to have it done. The results were that they saw some fluid on her brain and then wanted to have a MRI done on Monday.
Monday, really you tell me they see fluid on her brain and you want me to wait all weekend to get more answers. How was I suppose to relax and enjoy the weekend knowing this was happening to my baby girl and not really knowing what it all meant. Looking back I am glad that I didn't know what it meant because it was Halloween weekend so at least we had a little fun.
Our Little Ladybug's First Halloween
We enjoyed the afternoon with my family at the Dowling Pancake Breakfast followed by Living History Farms. After that we went over to the Kinney's for trick or treating.
Our First Month
Our baby girl is 7 weeks old today, hard to believe that she is growing so quickly. Normally this is the time where we would finally be getting in a daily schedule as we would soon be returning to work after enjoying weeks at home with out baby girl. Unfortunately that has not been the case for us. Let me start from the beginning to explain the past 7 weeks.
Bringing out baby girl home from the hospital was the best day. We knew that it was going to be challenging bringing a preemie home. Since she has lost almost 10% of her birth weight we were on strict feeding schedule. Every two hours day and night she needed to be fed. In the beginning Nora was struggling with eating due to her tongue tie and not able to figure out sucking. The first week home it would take us about an hour to get her to take 15-20ml. This took a lot of effort to to keep up with. Nora also was Jaundiced so we have to have Home Health care come out to the house to pout her on a photo therapy Bili blanket. Along with this came daily trips to the doctors office to check her bilirubin levels and get a weight check. She slowly started to gain weight and her bilirubin levels came down so we could get her off the blanket.
Since her tongue was causing concerns with her feedings we ended up having that clipped. It was a quick and easy procedure and made a HUGE difference. After we got her tongue clipped she started eating really well and was finally latching on to breastfeed as well. By this point we were at the doctors office almost every day for the first 2 weeks, which meant time for our 2 week checkup.
At our 2 week check up everything seemed to be doing okay. She was back up to her birth weight and eating like a champ. Our Pediatrician said that she heard a heart murmur (didn't seem to of concern) and her head circumference was on the larger side so she want us to come back at 1 month of age rather that 2 month which would normally be the next appointment.
Finally a full 2 weeks with no doctor appointments!!!
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