11-05-2011 to 11-09-2011
After a VERY stressful week it felt great to finally be home. A week in the hospital is a week to long. Everything seemed to be going well. She looked incredible, her eyes were functioning normal and moving like they should. She was eating normal and didn't show any signs of any issues. She minimal swelling as would be expected after surgery. We didn't have to go back for a follow up for 2 weeks when she could get her stitches out. Tuesday morning Freddy had to go to Omaha for his annual hearing test so we decided to just make a day of it and go with him. We were headed home and noticed that Nora's shunt site was swelling more that normal. We decided to see if it goes down and if not we would call the Neurosurgeons in the morning. The swelling continued over night. You can see the comparison from the day we came home to Wednesday morning. YIKES!
I called Iowa City they said we could go see our own pediatrician too see if they think it is something that we need to drive to Iowa City for or if she thinks it normal swelling. Looking at it I could tell you it wasn't normal but somethings they have told us were ok I wouldn't have thought were okay but I am not a brain surgeon either. Our pediatrician felt like we need to go to Iowa City so there we were driving to back to Iowa City.
Once we got to Iowa City, they agreed that it was normal but felt it was nothing that was of danger to her. He drained the fluid off and then told us that we need to keep a pressure wrap on it. When they adjusted her settings it built up pressing causing the seal to break on the reservoir causing fluid to leak around the site. Keeping pressure on it will help that to fuse to stop the leak. So they adjusted her shunt down to lower the pressure and once everything settles and leak seals we can adjust pressure again to get everything in place.
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| Pressure wrap after we left the hospital |
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